
Two of my shooting friends are suffering from chronic Lyme disease. At least, I believe they are; they believe they are; and they’re showing typical symptoms, following exposure to potentially infected tick bites. Once healthy, active, outdoor people they are now crippled with a range of horrible symptoms including numbness, joint pain, blinding headaches, dizziness and chronic fatigue.
The NHS, however, is giving them the runaround. An endless round of visits to the GP, hospital appointments, tests and scans, inconclusive results, more tests. Meanwhile they get no treatment, and their symptoms get worse.
The NHS website says all the right things:
…diagnosing Lyme disease is often difficult as many of the symptoms are similiar to those of other conditions. Blood tests are useful and important in acute infection but don’t always confirm diagnosis.
Diagnosed cases of Lyme disease can be treated with antibiotics. Your course of antibiotics will depend on the stage at which your Lyme disease is at, but you will usually need to take them for two to four weeks.
All true – but read that again:. It’s difficult to diagnose, but only diagnosed [my emphasis] cases can be treated with antibiotics. You could die – literally – waiting for the professionals to provide that diagnosis. The NHS will only provide an unreliable test, with a 90% ‘false negative’. In other words, if you test 10 people who have the disease, only one of them will show up as positive. Nine of them won’t get treated.
The National Audit Office has just released a report criticising our health service for failing people suffering from neurological conditions. On 16 December NAO boss Amyas Morse said: “Services for people with long-term neurological conditions are not as good as they ought to be, despite a large increase in spending. Progress in implementing the Department’s strategy has been poor and local organisations lack incentives to improve the quality of services.”
The report focuses on high profile diseases such as Parkinson’s, MS and MND. But if they’re failing in those areas, how much worse are they failing sufferers of Lyme – a disease that has a much lower awareness among GPs and other health professionals?
So how big is the problem? The fact is, no-one knows – because we have no idea how many people are walking around undiagnosed, and no-one has even done the research to discover how widespread the disease is in ticks in the UK. The Health Protection Agency estimates that there are 2,000 to 3,000 cases of Lyme disease in England and Wales each year, of which about 15%-20% of cases are picked up abroad. That’s a wild guess – they have no idea.
What’s certain is that tick numbers are increasing throughout the UK, and they’re active earlier and earlier each year. As shooters, stalkers, gundog owners and the like, we are one of the highest risk groups – it’s hard to think of a better way of getting bitten than crawling around on hands and knees in the undergrowth, in areas frequented by deer and other wild mammals.
The best advice is to take sensible measures to avoid tick bites, check yourself over for ticks after a day outdoors and remove them properly (with a tick remover), be aware of the symptoms and if you suspect you may have Lyme disease get along to your doctor and don’t take no for an answer.
More info and awareness campaigning at Lyme Disease Action and BADA-UK.